Tag Archives: digital technology

Introducing the new Click Guide to Dementia: sharing resources from the digital world

It is my birthday today and what better way to celebrate than by launching our new Click Guide to Dementia. Whether you work in the public, private or not-for-profit sectors technology is transforming the way that people connect and services are delivered. Digital technology and social networks provide some of the most powerful tools available today for building a sense of belonging, support and sharing among groups of people with similar interests and concerns.

Digital technology is driving a revolution in care and the growing use of mobile devices, apps and social networks is becoming significant in enabling people to live more independent lives, irrespective of their health and care needs. Care in the digital age provides opportunities to reach out and support people in more exciting and radical ways. “In the digital age how can we easily keep track of the many resources available? The Click Guides are filling an information gap” Paul Taylor Innovation Coach Bromford Lab

A diagnosis of dementia can be scary for the individual, their family and friends. It helps that there are an increasing number of online resources which can make a difference by providing information, advice, support and specialist products and services. From blogs and tweetchats to personal support networks and life changing products the Click Guide to Dementia provides a unique perspective on the influencers, disruptors and innovators in the sector.

I feel privileged that Dr Shibley Rahman a dementia researcher and author I respect enormously has described The Click Guide to Dementia  which brings together more than a hundred of the most useful resources with hyperlinks to websites, blogs, facebook pages and twitter feeds as “a brilliant initiative”

The Click Guide to Dementia is available to buy as an eBook for £4.99 and a Paperback for £8.99 (plus p&p)

The Click Guide to Dementia is the first in a series of directories being developed to help people access and  enjoy the opportunities and benefits offered by the internet. To reflect the rapid growth of digital technology solutions intended to enhance care and support we are planning to update this Guide in April 2017.

If your organisation would like to be included in the next edition of the Click Guide to Dementia please provide evidence of your impact. We will be highlighting those organisations who have shown how they are making a difference to people’s lives and the lessons learned and shared from both success and failure.

Social media provides real time feedback and you could show evidence of impact in many ways including: hits on your website, testimonials, number of report downloads, likes and comments on your Facebook page, engagement on Twitter and in discussion forums. Please email your details to Shirley@clickguide.co.uk  with a link to the website and 100 word summary explaining why it should be included by 31st March 2017.

To keep informed about future publications, updated versions of the guides and other resources, why not sign up for our e-newsletter? Click Guides to Ageing Well, Digital Technology for Adult Social Care, Mental Health and Community Connections will be published over the next six months.

Find out how your organisation can subscribe to give staff, service users and volunteers online access to the Guide through the Click Guide to Dementia Update

 

 

 

 

 

How can digital technology help a person living with multiple sclerosis?

Such a simple, obvious and wise statement – it would be so exciting if every individual offered a personal health or care budget was able to access a digital care navigator. Sadly the social sector (including health, care and charities) have not yet managed to bridge the gap between the rhetoric of digital transformation and the everyday experiences and reality for citizens..

I was recently asked for advice about how digital technology could help  a person with late onset multiple sclerosis deteriorating rapidly. She loved crafts, needlework painting etc but is losing use of her hands.  She has a laptop but using the mouse is getting tricky.

It emphasised for me how important it is for people to be aware of, and able to access, online resources to support independent living and #ageingbetter so I thought it would be helpful to share resources.

It is definitely worth contacting AbilityNet a small and impressive UK charity helping disabled adults and children use computers and the internet by adapting and adjusting their technology. They provide a range of factsheets and advice and information services.

@AbilityNet run the inspiring @Tech4GoodAwards which celebrate the people and technology making the world a better place. 2016 finalists will be announced on the 8th June!

AbilityNet have been shortlisted as Digital Charity of the Year 2016 by Digital Leaders 100. The winners will be chosen by a public vote and you can vote for them now on the Digital Leaders website and help spread the message about the amazing way that technology can transform the lives of disabled and older people.

[Declaration of interest: I have a real fondness for small charities with a big vision who know how to be creative and deliver results with limited funds!]

A helpful post on using a computer if you have tremors

UCanDoIT is a charity that teaches IT skills to people with disabilities on a one to one basis in their own homes. @ucdit

Another site with useful information about technology and disability

(and I am sure there are many more to be added!)

Tips and tricks for folks with Multiple Sclerosis (Microsoft 365)

From gaming system to medical breakthrough: How Microsoft and Novartis created Assess MS

Touchscreens such as iPads are tactile, versatile and very simple to use and the apps make it easy to play accessible games, which help memory, agility and interaction. iPads can be used for all manner of activities such as games, apps, accessing websites and playing music and video.

However before buying any apps it is always worth reading the reviews, checking compatibility requirements with laptop/tablet being used  and whether the app is really free or being offered as a subscription model!

Some fun interactive apps

Pigment (free to download but with a Premium Access paid subscription) allows you to colour as you would on paper with actual colored pencils. Choose from 350+ hand curated, professionally drawn illustrations, 8 different kinds of pencils, markers and brushes, and an unlimited number of colors to choose from. Completed artwork can be friends and family.

Painterly £1.49) allows you to create beautiful evocative pictures even if you do not have advanced drawing skills or formal art training Allows for painting with more than 60 virtual brushes, as well as importing photos and then painting them

List of googled needlework apps for iPad (not my specialist area does anyone have any recommendations?)

Games

Imutt (free but charity will invite a donation) This game from the Dogs Trust allows users to look after an impossibly cute virtual rescue dog for five days. Perfect and no need to walk in bad weather!

FlowerGarden (free with further in-app purchases) allows you to pick virtual seeds, plant them, water them and watch them grow. This is especially significant for participants who used to enjoy growing plants and are missing their former gardens.

An honourable mention for the informative @AXSChat which runs the informative weekly #AXSchat discussing accessibility & inclusion in business on the web & beyond.

I have reached out to the Multiple Sclerosis charities for advice and will update this post  when I receive responses.

I met Paul Smyth Head of IT Accessibility at Barclays Bank recently and was very impressed by his thoughtful and measured approach to accessibility and inclusive technology. I recommend listening to his interview.

It is so obvious really that digital technology can make all the difference to the quality of life for people living with disabilities and why I believe it is so important to make #connectedcare a reality.

Obviously this post is only a snapshot of available resources (I am not a assitive technology specialist but I work with companies excited to use technology to improve their services).

And I am always very aware that what digital technology offers are endless possibilities to make person-focused care a reality. 

I welcome your thoughts about resources you have found helpful. please add to the comments section below or share with me via Twitter @shirleyayres

 

Introducing the Connected Care Network

In these challenging times we need a new vision which acknowledges the importance of bringing people together and using the power of digital technology to build and support more connected communities.

Care and support in the 21st century requires much more connected thinking across social services, health, housing, education and employment. Technology and social media can facilitate this process.

The Connected Care Network works across sectors exploring how innovation and new ways of thinking can be embedded and supported within communities.

There are hundreds of digital technology innovations being developed and supported by a range of funders. Paradoxically we are not using technology to make these innovations more accessible and available to an increasingly diverse market which includes individual citizens, commissioners and providers of community support.

Find out what happened at

 #kentdigicare a milestone for connected care?

Reflections on Connected Care Camp #psicare

#caregoesocial some thoughts on the journey

We need a mindshift away from a focus on technology as a means to an end and to think about how technology can help address the challenges .of our age which include social isolation, loneliness, supporting people living with dementia and their carers, developing the skill and talent of young people and creating communities we all want to live in.

We have developed a range of programmes in response to many discussions with clients about gaps in the market for connecting innovations and digital technology with the individuals, communities and organisations who would benefit from new ways of thinking and providing services.

We also provide Critical Friend Reviews to help organisations focus on their priorities for digital engagement.

These are exciting times. As Professor Stephen Hawking said, when accepting his AbilityNet ‘Excellence in Accessibility Award’ at the Technology4Good awards “Technology is a vital part of human existence. They show us that the right tools in the right hands can help everyone, regardless of our frailties, to achieve our true potential and advance as a civilisation.”

Find  out how we can help your organisation in creating new collaborations and partnerships.  If you would like to find out more I would be very happy to talk to you!

@shirleyayres on Twitter

Shirley.Ayres@btinternet.com

Reflections on Connected Care Camp #psicare

First of all an introduction to the Connected Care Mindmap developed by @clarkmike. We have been identifying relevant resources over the past few months to share and give people a context for the problems identified through many online discussions and the Priorities for Care survey.

So much energy, thoughts and learning in one day and a lot of sharing resources through Twitter, videos & blog posts. A great post from @whatsthepont highlighting the benefits of collaboration  Open Data Age UK Cheshire, Fire & Rescue Service, Dementia Advisor. Odd one out?

For me many key problems centred around confusion about the role and responsibilities of the different care and health bodies. How does NHS England link with Healthwatch, the Care Quality Commission and the Health and Wellbeing Boards? What will be the impact of the £3.8 billion Better Care Fund and the Integration Pioneers?

Recommended viewing the excellent Alternative Guide to the NHS produced by the Kings Fund.

I would like to encourage @TheKingsFund to produce a similar Alternative Guide to Social Care I think many people would find this very helpful because the sector is so complex and fragmented!

There is a need for cultural change in health and care services which will enable innovations to be adopted and adapted more quickly. “We need to create the environment for difficult and challenging conversations” and with a huge funding gap looming this was seen as a priority. Despite the fact that social care is critical to support people mdischarged from hospital the sector is seen as the junior partner. This is not doubt influenced by the considerable discrepancy between health and care budgets and that health care is free at the point of delivery whilst social care is means tested. Changing the culture of organisations with the added pressures of public expectation about openness and transparency was seen as a major challenge. There are currently perverse incentives in the funding mechanisms and little encouragement to be brave and take risks in the redesign of services.

There was considerable discussion about how people can access information about existing resources both online and offline. There was a recognition that we need to tailor information channels to suit the different needs of individuals. An innovative proposal was the suggestion of developing guides to “the 5 things I need to know” across the wider care sector.

I was interested to learn that Health and Social Care West Midlands have created a site to to support health, social care and wellbeing leaders in the West Midlands to develop the more integrated services envisioned in the Health & Social Care Act 2012. Could this provide a template for more regional sites which provide access to relevant and timely resources? @hscwm

The importance of enabling people in residential care to access the internet and digital resources was recognised and there was some astonishment that we do not know how many care homes currently provide this for residents.

A consistent theme was the need to share both good practice and to learn lessons from what has not worked. there were many examples shared of how different organisations are supporting and connecting people to feel less isolated and more supported in their communities. It is worth reading the newly published Joseph Rowntree Trust Report on what makes a better life for older people.

Identifying transition points  and making sure that services are built around supporting individuals and their families was an important issue with many comments on the lack of basic information shared between the NHS and social care and poorly designed hospital discharge plans.

Many of the concerns about Integrated Care which were raised at Connected Care Camp are echoed in the recent @iMPOWERCONSULT report “A Question of Behaviours: Why delivering care integration and managing acute demand depends as much on changing behaviour as new systems and structures.”

One of the many sessions on the day discussed data driven social care which has been helpfully summarised by @resiflexUK in his post a round up of #psicare. An impressive summary thanks Conor!

Some big isssues:

On February 14th 2014 152 local authorities have to submit plans which should include how they are going to link health and social care data together by NHS number. The November TelecareLIN eNewsletter supplement on Integrated Care @clarkmike helpfully provides the  Better Care Fund requirements for joined up systems.

Who owns the data held on each of us and how can we free it?

How will local authorities deal with all of the self funders who will be eligible for an assessment under the new Care Bill?

There were very diverse levels of awareness about the potential of digital technology to help develop new ways of working and collaborations which are defined by outcomes rather than outputs. But a cautionary note from @MindingsStu an inspiring technology innovator and entrepreneur!

My call to action!

https://twitter.com/whatsthepont/status/409350948616933377

 

Can digital technology help make connected care a reality? #psicare

There are six Breakout sessions at Connected Care Camp being held on Saturday 7th December. Below is a brief list of some of the many online resources available. Using technology and thanks to @clarkmike we now have a Connected Care Mindmap with lots of resources to inform our discussions at the event.  if you have a resource you would like to add to the Mindmap please tweet a link to the relevant URL using #psicare

Social Isolation, Loneliness and the impact on health and wellbeing

Joseph Rowntree Foundation #Loneliness Resource Pack
How can we ensure a good quality of life for adults in residential care and housing with support. This means having a sense of purpose and full inclusion within the community with strong social contacts and mental stimulation.

 “ Residents reported being able to look at websites to do with their interests and hobbies, use internet shopping sites and communicate with family members, often overseas. Some had already noted beneficial impact on their carer’s ability to help manage their condition.”

Get Connected programme Social Care Institute for Excellence

Examples of how digital technology in empowering and supporting the health and wellbeing of individuals.

Information, advice and support across the care, health and housing sectors.

Connected Communities

How digital technology is supporting individuals to connect in different ways and live more independent and fulfilling lives within the community.

One of the simplest needs is the ability to stay in touch with family and friends who may be widely dispersed. There are a range of online tools available to address the practical tasks of co-ordinating the care and support of an individual.

Virtual, online and microvolunteering provide different ways for people to contribute to their communities online

Digital Literacy, Inclusion and the Barriers to Technology Adoption
Accessing and learning about the digital world can be a challenge for many groups in the UK.  Getting started on the internet – a brief guide
The challenges of Integrated Care

User and patient engagement and the personalisation of services

How can technology world encourage more patient and user engagement? Are public services signposting people to the many online support forums now available?

Follow Connected Care Camp and join in the discussions on Twitter using the hashtag #psicare

#psicare Can online innovations enhance social care?

The simple answer for me is yes whilst I accept that digital technology is not a “magic bullet” I do believe it is important that we explore the potential of  technology to create more personal support and care.

As Professor Stephen Hawking said, when accepting his AbilityNet ‘Excellence in Accessibility Award’ at the Technology4Good awards: “Technology is a vital part of human existence. They show us that the right tools in the right hands can help everyone, regardless of our frailties, to achieve our true potential and advance as a civilisation.”

The posts I have written for Nominet Trust exploring the issues:

Can online innovations enhance social care?

How online personal support networks can promote more integrated care

Why digital inclusion is important for care home residents

How digital technology is supporting people living with dementia

Celebrate & learn from the world’s most inspiring social technology  ventures. Featuring the 2013 Nominet Trust 100

Enjoy!

#kentdigicare a milestone for connected care?

On the 12th July an exciting event took place in Sittingbourne Kent. 150 professionals and volunteers from care, health, housing, community services and the voluntary sector joined together with service users and carers to discuss how digital technology can enhance care services. They were joined online by people with an interest in social innovation for care from across the UK. The aim of the event was to explore how digital technology can help to improve the wellbeing of individuals who need care and support as well as their families and carers.To encourage social learning from the event we have gathered together all of the resources shared before, during and after the day.

#KentDigiCare was the first collaboration from the Connected Care Network. We are now in discussions with a number of organisations and further collaborations will be announced in the autumn.

Welcome to #kentdigicare @shirleyayres

Why I’m excited about #kentdigicare by @uk_james

Conference Programme via @KentSocialCare

Presentations

@dominiccampbell “Care in the Digital Age: The Use of Technology in Care 

Can online innovations enhance social care? Shirley Ayres 

Workshops To understand how social networks are now influencing innovations in  care the first workshops provided participants with the opportunity to find  out more about using social media and providing digital leadership. A big thank you to  all our  workshop facilitators who travelled from far and wide to support Kent Care in the Digital Age!

Social Media – The Basics @paulbromford

Social Media top tips for #kentdigicare from @clarkmike and @shirleyayres

The event was followed widely across the UK !  #kentdigicare a quick video summary thanks @ailinmartinez

Resources provided for the workshops

Monmouthshire County Council Social Media Guidance for staff and members

Bromford Group Social Media Guidelines

NHS Employers HR and Social Media Guidance

Engage: Digital and Social Media Engagement for the Police Service

Social Media 

The Public Sector Social Media Survey 2013 Infographic from Goss Interactive provides a snapshot of the public sector’s current use of social media on an organisational level.

20 Things They Never Told Us About Going Social – Paul Taylor

Seven Twitter mistakes we all have to make – Helen Reynolds

Social Media Playbook – ELOQUA

Twitter in 15 minutes A beginners guide by @besttechguyever  Facebook 101 for health and care organisations@claireOT

Social Media in Mental Health Practice @VictoriaBetton

The Click Guide to Digital Technology for Adult Social Care

An archive of all the Live Stream recordings made during the day by @johnpopham is available to watch on YouTube 

The tweets were storified thanks to @clarkmike

#KENTDIGICARE – 12 JULY 2012 (WITH IMAGES, TWEETS) · CLARKMIKE

#KentDigiCare – the discussions continue – 15 July 2013 (with tweet)… 

You can still join in the discussions and share resources via the #KentDigiCare hashtag on Twitter.

#KentDigiCare Symplur Analytics Headline Numbers: over 2,643,755 impressions, 194 people participated online and an average 46 tweets per hour.

Blogs

My first blog post! Care in the Digital Age Reflections @TeresaTinsel

#KentDigiCare – a giant leap for Social Movements @whoseshoes

Mindings and Care in the Digital Age @MindingsStu

What did we achieve?

Every participant to make at least five new connections, learn about five new technology innovations that will enhance care in their communities and taking  learning points to share with colleagues in the workplace and community connectors and builders.

Conclusions

“The Kent Care in the Digital Age event created a fantastic environment for engagement, improving understanding and furthering discussion about how  professionals can widen their understanding of the digital opportunities that exist.  We need to understand  how technology can support people to connect with their communities, provide tools for family carers and professional staff and  importantly put people in more control of their own lives. One of the key messages coming through from #kentdigicare was that we need to support people, whenever possible, to use the technology themselves to complement more “traditional”health and social care support. It’s time for health and social care to catch up and enter the digital age.” James Lampert Commissioning Manager Kent County Council @uk_james

Any questions for @dominiccampbell our next guest on the Disruptive Social Care podcast?

I am delighted to announce that Dominic Campbell will be our next guest on the Disruptive Social Care podcast. Dominic  is is a digital government specialist and social innovator with a background in government policy, communications and technology-led change.

Dominic was a keynote speaker at Kent Care in the Digital Age #kentdigicare held on the 12th July. He raised many challenging questions  about the importance of human relationships in public services and how people talk to each other. 

Dominic established FutureGov in early 2008 and has a keen interest in emerging uses of new media and “social” strategies to deliver public service transformation and social innovation.

The Panel Debate at #kentdigicare exploring “The Future of Personalisation? Service Users, Carers and Digital Engagement”

Dominic is also co-founder of several social web start-ups: · Patchwork a collaboration tool for multi-agency working, currently focused on children and families intervention · Casserole a peer to peer meals on wheels service Enabled by Design a community of people interested in Design for All.

We are inviting you to submit questions for discussion with Dominic by the 20th August 2013. Whilst we may not be able to cover all of the questions asked we will be summarising the key themes which arise. You can tweet your questions to @shirleyayres using the hashtag #deukcare or email: shirley.ayres56@googlemail.com

https://twitter.com/SaraMcKeeFRSA/status/366474503213158402

You can catch up with our previous guests on the Disruptive Social Care podcasts here!

You can watch recordings of the live stream videos from #kentdigicare here thanks to @johnpopham 

Welcome to #kentdigicare

smwldn images The Kent Care in the Digital Age conference on July 12th is bringing together 150 staff, volunteers, service users, carers, innovators and care providers to explore how digital technology can enhance community care and support. The event is fully booked with a waiting list but we hope many more people will be involved through watching the live stream from 9am and joining in the conversations on Twitter using the hashtag #kentdigicare.

Programme

9.00 – 9.30 Registration

9.30   Welcome Shirley Ayres Founder Connected Care Network @shirleyayres

9.30 – 9.40 A vision for Connected Care in Kent – Dr Robert Stewart Clinical Lead Kent County Council

9.40  – 10.10 The Benefits of Supporting Care Innovations – Dominic Campbell Founder and Director FutureGov @dominiccampbell 

10.10 – 10.25 Can online innovations enhance social care? – Shirley Ayres

10.25 -11.15 Choice of Practical Workshops to develop confidence and share expertise about the use of digital tools with practical advice about how to get started or improve your social media and networking skills.

  • Social  Media Basics “How to” engage with social media and what are the benefits? – Paul Taylor Bromford Group @paulbromford
  • Developing a strategic approach to social media  – James Lampert Commissioning Manager Kent CC @uk_james and James Souttar Co-founder Connected Care Network
  •  Advanced Social Media Masterclass – Mike Clark Managing Editor Telecare Learning and Improvement Network @clarkmike and Shirley Ayres Connected Care Network

11.15 – 11.45 Break

11.45 – 12.30 Choice of themed workshops bringing participants and innovators together to explore how technology is supporting people to live more independently, manage their health & wellbeing, make social connections, combat isolation and volunteer online.

  • Community Connections
  •  eMental Health
  • Patient and User Engagement
  •  Digital Inclusion
  •  Supporting Carers and Families
  •  Online Volunteering and Timebanking
  •  Residential Care and Supported Housing
  •  Online Marketplaces

12.30 – 1.45 Lunch and Innovators Showcase with live demonstrations

1.45 – 2.30 Themed workshops repeated

2.30 – 3.00 Plenary with feedback from the workshops facilitated by James Souttar Co-founder Connected Care Network

3.00 – 3.30 Break and Innovators Showcase

3.30 – 4.15 “The Future for Personalisation? Service users, carers and digital engagement” Interactive panel debate with questions invited from the audience and through Twitter Chair Shirley Ayres

4.15 – 4.30 Closing Remarks Dr Robert Stewart