First of all an introduction to the Connected Care Mindmap developed by @clarkmike. We have been identifying relevant resources over the past few months to share and give people a context for the problems identified through many online discussions and the Priorities for Care survey.
So much energy, thoughts and learning in one day and a lot of sharing resources through Twitter, videos & blog posts. A great post from @whatsthepont highlighting the benefits of collaboration Open Data Age UK Cheshire, Fire & Rescue Service, Dementia Advisor. Odd one out?
For me many key problems centred around confusion about the role and responsibilities of the different care and health bodies. How does NHS England link with Healthwatch, the Care Quality Commission and the Health and Wellbeing Boards? What will be the impact of the £3.8 billion Better Care Fund and the Integration Pioneers?
Recommended viewing the excellent Alternative Guide to the NHS produced by the Kings Fund.
I would like to encourage @TheKingsFund to produce a similar Alternative Guide to Social Care I think many people would find this very helpful because the sector is so complex and fragmented!
There is a need for cultural change in health and care services which will enable innovations to be adopted and adapted more quickly. “We need to create the environment for difficult and challenging conversations” and with a huge funding gap looming this was seen as a priority. Despite the fact that social care is critical to support people mdischarged from hospital the sector is seen as the junior partner. This is not doubt influenced by the considerable discrepancy between health and care budgets and that health care is free at the point of delivery whilst social care is means tested. Changing the culture of organisations with the added pressures of public expectation about openness and transparency was seen as a major challenge. There are currently perverse incentives in the funding mechanisms and little encouragement to be brave and take risks in the redesign of services.
There was considerable discussion about how people can access information about existing resources both online and offline. There was a recognition that we need to tailor information channels to suit the different needs of individuals. An innovative proposal was the suggestion of developing guides to “the 5 things I need to know” across the wider care sector.
I was interested to learn that Health and Social Care West Midlands have created a site to to support health, social care and wellbeing leaders in the West Midlands to develop the more integrated services envisioned in the Health & Social Care Act 2012. Could this provide a template for more regional sites which provide access to relevant and timely resources? @hscwm
The importance of enabling people in residential care to access the internet and digital resources was recognised and there was some astonishment that we do not know how many care homes currently provide this for residents.
A consistent theme was the need to share both good practice and to learn lessons from what has not worked. there were many examples shared of how different organisations are supporting and connecting people to feel less isolated and more supported in their communities. It is worth reading the newly published Joseph Rowntree Trust Report on what makes a better life for older people.
Identifying transition points and making sure that services are built around supporting individuals and their families was an important issue with many comments on the lack of basic information shared between the NHS and social care and poorly designed hospital discharge plans.
Many of the concerns about Integrated Care which were raised at Connected Care Camp are echoed in the recent @iMPOWERCONSULT report “A Question of Behaviours: Why delivering care integration and managing acute demand depends as much on changing behaviour as new systems and structures.”
Some big isssues:
On February 14th 2014 152 local authorities have to submit plans which should include how they are going to link health and social care data together by NHS number. The November TelecareLIN eNewsletter supplement on Integrated Care @clarkmike helpfully provides the Better Care Fund requirements for joined up systems.
Who owns the data held on each of us and how can we free it?
How will local authorities deal with all of the self funders who will be eligible for an assessment under the new Care Bill?
There were very diverse levels of awareness about the potential of digital technology to help develop new ways of working and collaborations which are defined by outcomes rather than outputs. But a cautionary note from @MindingsStu an inspiring technology innovator and entrepreneur!
My call to action!