Category Archives: Connected Care Network

Update: Click Guide to #Dementia

I  have been touched and excited by the interest and support for the Guide. since we launched (read the original post here) and we are now working on the next two Guides which we hope to launch soon.

You can buy the Guide here and I appreciate it can be a tough choice between the eBook at £4-99 which has clickable links and the Paperback at £8-99 (plus p&p) a valuable reference book. Or why not buy both!

A big thank you to everyone sharing and liking information about the Guide.

The Click Guide is self funded and has been produced by a very small group of professionals who believe passionately that technology can benefit all of our lives but only if information is accessible to enable people to make informed choices about how digital resources can enhance care and support.

An important reminder that the Terms and Conditions for using the Click Guide to Dementia eBook state that the Guide is for personal use and can only be downloaded on one device (laptop, iPad, Tablet or smartphone).

If you are an organisation who would like to support staff, service users and volunteers to benefit from online access to the Guide or a membership subscription service who wish to add our digital resources to your database please contact us to buy a licence which is available for a reasonable fee  dependent on the numbers who will be accessing the resources in the Guide.

For more information about buying a licence or for a digital copy of the Terms and Conditions of Use please contact Shirley@clickguide.co.uk 

 

 

How social media can support #ConnectedCare

In these challenging times I believe we have a responsibility to show how the digital revolution which is impacting on all of our lives can bring people together to build and support more connected communities.

Care and support in the 21st century requires much more connected thinking across social services, health, housing, education, employment and the wider social sector. Technology and social media can facilitate this process. I am often puzzled when I see different sectors running events with similar themes on the same day and not making the connections which could avoid duplicating resources or reinventing wheels. It can so often seem that sectors are just talking to themselves rather than reaching out and creating new networks and collaborations.

Admittedly we have been slow creating a mindshift away from technology as a means to an end and thinking about how digital technology can help address the wicked challenges of our age. How does technology have a role in addressing social isolation, loneliness, supporting people living with dementia and their carers, developing the skills and talent of young people and creating communities we all want to live in? Is the missing link the absence of digital leadership in the social sector?

To promote new ways of thinking I have used and continue to use social media to highlight resources which I believe could benefit from a wider audience than the “usual suspects” In this spirit and because there are so many events taking place I am sharing my selection of  interesting and innovative events which you can follow on Twitter. The obvious (to me anyway) connection between all of these events is that we all live in communities which include children, young people, families, people living alone and carers. We all have something to share and we can learn from each other. 

Today MOMO are hosting  a national conference exploring digital social work challenges and good practice. @MindOfMyOwnApp have developed an app that gives children and young people the confidence & ability to express their needs. It is so important that looked after children have a voice and I am impressed by the impact of this app. Follow via

 

The inestimable @johnpopham is live streaming this event.

http://www.mindofmyown.org.uk

This week is #dyingmattersweek. Every year @DyingMatters host an Awareness Week, which gives us an unparalleled opportunity to place the importance of talking about dying, death and bereavement firmly on the national agenda. This year the theme is ‘The Big Conversation’ and you can share your thoughts via #BigConversation.

 http://www.dyingmatters.org

Neighbourhoods of the Future is being held on the 11th and 12th May.  This event will take a fresh look at age friendly homes and communities as a means of tackling the challenges of ageing better. Topics being explored include the emerging possibilities of smart homes and age friendly cities. With hundreds of organisations now involved in the #AgeingBetter industry it will be fascinating to see how many will be sharing their thoughts via #agileageingroadshow http://www.lansons.com/looking-forward-growing-older

The Festival of Behaviour Change starts today in Bangor 9th – 20th May 2016. Behaviour Change Science is a combination of psychology, social sciences, design thinking and practical application that could revolutionise the design and delivery of public services. It can help individuals to make better decisions by altering the way in which choices are presented to them. This is an important exploration because there are rightly ethical concerns about who determines what is the “right” behaviour.  I am particularly interested in the sessions on Behaviour Change and Service Delivery ModelsBehaviour Change in Health and the Future of Health Care and The use of Technology in the Pursuit of Behaviour Change. Follow the discussions via . I understand some of the sessions will be live streamed via Periscope.

http://www.goodpractice.wales/bangor

Advance notice of Dementia Awareness Week taking place from the 15th – 21st May 2016. This is an important opportunity to increase understanding of dementia and find out what support is available for people living with dementia and their carers. There are a wide range of special events taking place across the country.

Follow #DAW2016 to contribute to the debates and share your thoughts about what works and what needs to change.

If there are other events which I think are interesting, informative and innovative I will add them to the list during the week!

On Being Social To help make your event more social I am sharing some top tips produced by @PaulBromford and I. (We are planning to update this in 2016!)

 

 

 

 

 

 

 

Practical Strategies for Learning from Failure is coming to Leeds! #LFFdigital

Following a successful workshop in Cardiff we are offering a second Practical Strategies for Learning from Failure in Leeds on Thursday 8th October 2015.

If you are interested in attending here’s the link to register your interest.

To find out more about what happened in Cardiff have a look at the Storify prepared by @GoodPracticeWAO

and the following posts:

Exploring the Benefits of Learning from Failure at #LFFdigital

@whatsthepont The James Reason Swiss Cheese Failure Model in 300 Seconds

@dosticen How can we build time for reflection into our digital lifestyles?

Failing to learn from failure and Learning from failure in complex environment – what does this mean for audit?

What attendees thought of the Cardiff workshop – feedback compiled by @commutiny

There are limited places available for this free workshop and early booking is advised. If you are allocated a place and unable to attend please let us know as soon as possible so that we can give your place to someone on the waiting list.

The #LFFdigital team look forward to meeting you in Leeds.

Shirley Ayres @shirleyayres Connected Care Network, Chris Bolton @whatsthepont Wales Audit Office, Roxanne Persaud @commutiny Doctoral Researcher, University of Southampton and Paul Taylor @PaulBromford Innovation Coach, Bromford Lab

Digital Innovation and #AgeingBetter

Presentation with thanks to Paul Taylor

I was delighted to be invited by Zoe Pedden creator of the innovative MyChoicePad to share thoughts about Technology in Social Care: Innovation in Adversity at the Wayra UnLtd and Insane Logic Digital Mouthpiece. The event was live streamed and there was a lively discussion on the #innovatecare hashtag.

There are too few opportunities for robust debate about the need for a long term revolution which challenges the traditional institutional models of care. I believe we have to disrupt the current care market because it is just not fit for purpose.

The report today about patients living with dementia being restrained by security guards in hospitals does not give me confidence about the dignified and respectful care we provide for our most vulnerable members of society.

My Long Term Care Revolution paper for Innovate UK highlighted the reality that living longer does not feel like a celebration when care options in later life do not reflect our aspirations and experience of living in a digitally connected world.

In 2013 Nominet Trust published my Provocation Paper exploring the question “Can online innovations can enhance social care?” The simple answer is yes but digital technology on it’s own is not the solution. Technology cannot fix broken systems and digital cannot be just a bolt  on or optional extra  – digital transformation has to be at the heart of every organisation.

Technology and tools help us navigate an increasingly complex world but they will never replace human creativity, empathy and intuition.  We have to understand both the potential and the limitations of what digital technology can offer.

We certainly need better ways to collaborate, signpost, and share knowledge. Connected Care is important to make sense of a complex and fragmented landscape. Innovation in adversity  has to involve care, health, housing, entrepreneurs, the technology industry, innovation funders, the wider social sector, citizens and whole communities.

We seem to have a deficit of imagination about how to build and support the strengths and assets within communities. How can we use technology to support citizens to live more fulfilling lives connected with the people, ideas and activities which are so important to each of us?

In 2013 I asked the question Digital Technology and care – how do we promote more connected thinking?

There is so much potential for digital technology to enable people to make new connections, contribute to person-centred support, develop community networks and new models of care so an obvious question is what is stopping more widespread adoption?f

There is no shortage of innovations in digital technology and millions of pounds are being spent supporting further developments. It is less clear about the application, impact and usage of these innovations. One problem is the limited awareness in the sector and amongst the public about what is available and it’s value. I believe that a big deficit is the lack of a strategic approach to embedding digital technology in the range of options to support people to live more fulfilling lives.

My proposals:

  1. Convene a roundtable for all the funders of digital technology to explore collaboration, sharing practice and a common approach to evaluating and promoting the outcomes and impacts of their investment.
  2. Provide signposts which enable care recipients, their families and carers to find out what technology products and services are available, both through statutory services or to purchase independently.
  3. Create, promote and participate in events that showcase innovations in care which could be adopted by local authorities, the NHS and housing providers.
  4. Map all of the digital community hubs (however defined) which are available to ensure that people have access to local resources. This would also identify areas where there is currently no support available.
  5. Benchmark levels of awareness about technology innovations across the care sector and work with key players to promote and share the benefits of innovation.

Are we making progress? Despite millions of pound given in grants for innovation and digital inclusion, endless reports, numerous conferences and a recognition that digital technology is an integral part of our lives I sometimes feel I am living in a parallel universe to the Ageing Better industry …..

David Wilcox is an intrepid social reporter who has written extensively about Living Well in the Digital Age. He helpfully highlighted that there is no mention in the recent strategy of the Centre for Ageing Better about technology and digital innovation.

From the Big Lottery Fund £82 million investment in Ageing Better to the £50 million endowment creating the Centre for Better Ageing and the diverse Nesta programs it seems there is a proliferation of partnerships exploring how to embed innovation in care but the jury is out about their impact.  Maybe the recently launched Innovate UK £4 million Long Term Care Revolution national challenge will provide some  answers?

The “Ageing” sector is a complex and fragmented  multi million pound industry involving  hundreds of organisations and millions of potential beneficiaries.  How often have you asked if your your product or service could be improved and made assumptions about the problems people really need help solving?

I welcome your ideas about how we can shift from yet more research and reports to innovation with practical and useful outcomes which will improve the quality of life for older people now and in the future! My #AgeingBetter dream encompasses  personalised care driven by technology, smart homes with sensors, robot companions and driverless cars.

Looking 20 years ahead as baby boomers reach the age 80 plus we still have time to plan and get it right. But we have to move from rhetoric and reports to action now!

Introducing the Connected Care Network

In these challenging times we need a new vision which acknowledges the importance of bringing people together and using the power of digital technology to build and support more connected communities.

Care and support in the 21st century requires much more connected thinking across social services, health, housing, education and employment. Technology and social media can facilitate this process.

The Connected Care Network works across sectors exploring how innovation and new ways of thinking can be embedded and supported within communities.

There are hundreds of digital technology innovations being developed and supported by a range of funders. Paradoxically we are not using technology to make these innovations more accessible and available to an increasingly diverse market which includes individual citizens, commissioners and providers of community support.

Find out what happened at

 #kentdigicare a milestone for connected care?

Reflections on Connected Care Camp #psicare

#caregoesocial some thoughts on the journey

We need a mindshift away from a focus on technology as a means to an end and to think about how technology can help address the challenges .of our age which include social isolation, loneliness, supporting people living with dementia and their carers, developing the skill and talent of young people and creating communities we all want to live in.

We have developed a range of programmes in response to many discussions with clients about gaps in the market for connecting innovations and digital technology with the individuals, communities and organisations who would benefit from new ways of thinking and providing services.

We also provide Critical Friend Reviews to help organisations focus on their priorities for digital engagement.

These are exciting times. As Professor Stephen Hawking said, when accepting his AbilityNet ‘Excellence in Accessibility Award’ at the Technology4Good awards “Technology is a vital part of human existence. They show us that the right tools in the right hands can help everyone, regardless of our frailties, to achieve our true potential and advance as a civilisation.”

Find  out how we can help your organisation in creating new collaborations and partnerships.  If you would like to find out more I would be very happy to talk to you!

@shirleyayres on Twitter

Shirley.Ayres@btinternet.com

#psicare Connected Care Camp – what are your priorities?

On Saturday 7th December Connected Care Camp is bringing together professionals, people who use services, carers and volunteers from across the care, health, housing, community services and voluntary sectors to explore how innovative thinking and technology can improve the wellbeing of individuals who need care and support as well as their families and carers. Connected Care Camp is provided as part of the Hub Launchpad and FutureGov Public Sector Innovation programme.

Thanks to everyone who completed our online survey for Connected Care Camp. These problems will form the starting point for our discussions on the day as we consider a whole range of possible solutions guided by the considerable and diverse knowledge and experiences of participants.

We are not live streaming Connected Care Camp because most of the day will be taking place across six different breakout sessions but you can follow and contribute on Twitter using #psicare. We will be taking photos (with thanks to @tomsprints) and hopefully will be capturing highlights through some video interviews.

Snapshot of the responses

The problems identified from the online survey and discussions (NB: this is not an exhaustive list of all the care challenges confronting social care, health and housing sectors   )

Problems to be explored in the Breakout Sessions

1. Social Isolation and Loneliness

How can health and care services support people who are lonely and isolated?

How can we learn and share lessons from successes and failure across the wider care sector?

2. Information, Advice and Support 

People struggle to find information, guidance and advice – how can we improve the systems?

How can we support self-funders and help make their purchase of care services more effective? What are the implications of the Care Bill?

How can we learn and share lessons from successes and failure across the wider care sector?

3. Connected Communities

How can we support more connected communities?

How can we support people with disabilities to live more independent and fulfilling lives?

How can we encourage all hospitals and care homes to provide wi-fi and internet access and ensure that residents in care homes are less isolated?

How can digital technology help to support carers & care networks?

How can we find out who funds innovation in the care and health sectors?

How can we learn and share lessons from successes and failure across the wider care sector?

4. Digital Literacy, Inclusion and Technology Barriers

How can we support staff, people who use care services, carers and volunteers to improve their digital skills and feel more confident using technology?

How can we negotiate the internal barriers which stop the adoption of technology which will support people to live more independently?

How can we share innovations including digital technology and good practice across the wider care sector?

Are commissioners aware of the importance of continuing technical support when establishing technology projects?

How can technology help develop the local care market place?

How can we learn and share lessons from successes and failure across the wider care sector?

5. The challenges of Integrated Care

How can we ensure that integration is focused not on systems but on co-ordinating care and support around individual needs and aspirations?

Are there any alternatives to the 15 minute care visits?

How could doctors, nurses, social workers and support staff better coordinate care planning and visits?

How can we encourage care homes to have video links to GPs and hospital doctors to avoid unnecessary visits and disruption?

How can technology help to reduce unplanned or readmissions to hospitals and ensure effective discharges

There are particular challenges for people living in rural areas to access services & product. How can technology help us to address the rural premium?

How can we learn and share lessons from successes and failure across the wider care sector?

6. User and patient engagement and the personalisation of services

How can digital technologies give people more control of their care and support and make person-centered care a reality?

Are there practical ways in which we can implement effective preventative measures?

Can we make any connections with NHS Change Day?

How can we run an effective campaign in the care sector to challenge perceptions and change the conversations?

How can policymakers (e.g. Health and Wellbeing Boards) use social media to liaise with local people?

How can we learn and share lessons from successes and failure across the wider care sector?

What do you think the wider care sector should stop doing i.e. because it involves duplication or is not cost-effective? 

Endless assessments (that are not acted upon/shared) ‘buck passing’ between services

Evidencing everything – instead find intelligent ways to do this to support care staff – so they are not spending all there time working on paperwork rather than care.

Large scale system developments – these invariably seem to be expensive with dubious improvements in the quality of care and support

Transport and ignoring the wider community offer.

Commissioning separate services for a specific client group

Not sharing information between professionals working with one individual. There is a major cost to duplicating of collection of data, storing and not sharing.

The training of carers is not good enough and needs to be overhauled

Make medication reviews mandatory for older people every 3 months. This to be done by a pharmacist to avoid duplication, conflicts and unnecessary repeats

Using jargon

Spending money on high level conferences and developing top down national initiatives

In local government – let go.

Commissioning in blocks

Find different ways of dealing with falls – current call outs are very costly for Ambulance Trusts.

Practical ideas about where money should be spent

Prevention, Prevention, Prevention

Developing capacity at neighbourhood level and encouraging micro-commissioning via online service portals.

Identify mavens/community champions – the people who know things in the community and ask them how we can support them in what they do. Do not create systems or structures for them to work within – they are already ‘doing it’. It should be about public services supporting what already exists, not building new.

Increasing number of hospital support assistants so that older people can be offered regular fluids to avoid delayed hospital discharge because of urinary tract infection.

Training for those interviewing care staff  to ensure that those being cared for are not vulnerable to abuse.

Use data/info to focus approaches and look at effective discharges. Develop a new role for health and care mentors.

Develop voluntary connected care champions in every neighbourhood.

Carers want to support each other through sharing their experiences, carer to carer training and using technology. Carers are fearful of asking for help from local/public sector but carers and their skills are community assets and they should be given micro finance to support and help identify more carers. Technology and reciprocity schemes are important to carers too.

Joint commissioning and integrated services.

The challenges in the system are significant in terms of technology and the lack of specific transfers between key professionals. Still heavy reliance on faxes for example.

Increasing the digital skills of activities co-ordinators Raising awareness in care organisation about the importance of technology

Providing digital access is a major barrier for connecting care. User demand can only happen when you give people the plaform and the skills.

Encouraging cross sector collaboration. What can business do in terms of working with the providers and Local Authorities around preventative measures?  We need to acknowledge the ability to recruit talent and drive engagement for productivity is affected by factors outside the workplace.

Isolation in residential care – a problem to solve at #psicare thanks to @mandy_paine_mbe

We have a whole range of problems to explore and find solutions to at the Connected Care Camp on the 7th December which are being added to as more people complete our survey. If you have not yet completed the survey about what the priorities are please do because we are learning so much from your responses!

The following Twitter conversation is a stark reminder of what needs to change urgently in the care sector. Thanks to Mandy Paine for allowing me to cite this conversation.

Are we seriously accepting that this is an acceptable level of care for older people living with dementia?

This is one of a number of practical problems  we will be encouraging Connected Care Camp participants to explore and suggest possible solutions and action points

We will also be helping people to understand who has the responsibiliy for making change.  This may include connecting with Jeremy Hunt Secretary of State for Health @Jeremy_Hunt,  Norman Lamb Minister of State for Care and Support @normanlamb , Jon Rouse Director General for Social Care@RouseJonDGDH,  Andrea Sutcliffe Chief Inspector of Adult Social Care@Crouchendtiger7@NHSEngland, Healthwatch England the consumer champion for health and care, @HealthwatchE,  @SCIE_socialcare,  @TLAP1 , @skillsforcare@skillsforhealth  and the Chief Executives of professional bodies and charities working in the field of dementia, isolation, loneliness and improving residential care.

the “elderly” what’s in a word?

https://twitter.com/bmc875/status/389307305151307776

https://twitter.com/bmc875/status/389309001105563648

Launch of the care e-Marketplaces survey

 As we become more used to purchasing goods and services through sites like eBay and Amazon what is the role for care e-Marketplaces which bring together buyers and sellers to purchase care and support services? Of course it could be argued that Google’s advanced search is, in effect, an e-Marketplace.

We are inviting families and commissioner’s to share their perceptions and experiences of using care online marketplaces (e-Marketplaces) and online care directories to purchase care services.

Reputation, trust and access are important elements in the purchase of care services sold online. In particular, self-funding individuals and their families purchasing care services need an easy way to identify providers who have been ‘vetted’ by a ‘trusted organisation’. It is important that service providers can demonstrate the quality and value of the services that they offer. It is equally important that service users and commissioners have a method of assessing the quality of services and comparing them when making purchasing choices.

The survey will be open until the 4th October 2013 and we look forward to your responses. To  complete the survey please click here