I have been touched and excited by the interest and support for the Guide. since we launched (read the original post here) and we are now working on the next two Guides which we hope to launch soon.
You can buy the Guide here and I appreciate it can be a tough choice between the eBook at £4-99 which has clickable links and the Paperback at £8-99 (plus p&p) a valuable reference book. Or why not buy both!
A big thank you to everyone sharing and liking information about the Guide.
Thumbs up to @shirleyayres for compiling a practical guide on services in Click Guide to Dementia as well as people seen as change makers
What a fabulous new resource, I'm delighted to be included. I know carers will find this new digital directory of resources a wealth of info https://t.co/hiDzm501J5
The Click Guide is self funded and has been produced by a very small group of professionals who believe passionately that technology can benefit all of our lives but only if information is accessible to enable people to make informed choices about how digital resources can enhance care and support.
An important reminder that the Terms and Conditions for using the Click Guide to Dementia eBook state that the Guide is for personal use and can only be downloaded on one device (laptop, iPad, Tablet or smartphone).
If you are an organisation who would like to support staff, service users and volunteers to benefit from online access to the Guide or a membership subscription service who wish to add our digital resources to your database please contact us to buy a licence which is available for a reasonable fee dependent on the numbers who will be accessing the resources in the Guide.
For more information about buying a licence or for a digital copy of the Terms and Conditions of Use please contact Shirley@clickguide.co.uk
It is my birthday today and what better way to celebrate than by launching our new Click Guide to Dementia. Whether you work in the public, private or not-for-profit sectors technology is transforming the way that people connect and services are delivered. Digital technology and social networks provide some of the most powerful tools available today for building a sense of belonging, support and sharing among groups of people with similar interests and concerns.
Digital technology is driving a revolution in care and the growing use of mobile devices, apps and social networks is becoming significant in enabling people to live more independent lives, irrespective of their health and care needs. Care in the digital age provides opportunities to reach out and support people in more exciting and radical ways. “In the digital age how can we easily keep track of the many resources available? The Click Guides are filling an information gap”Paul Taylor Innovation Coach Bromford Lab
A diagnosis of dementia can be scary for the individual, their family and friends. It helps that there are an increasing number of online resources which can make a difference by providing information, advice, support and specialist products and services. From blogs and tweetchats to personal support networks and life changing products the Click Guide to Dementia provides a unique perspective on the influencers, disruptors and innovators in the sector.
I feel privileged that Dr Shibley Rahman a dementia researcher and author I respect enormously has described The Click Guide to Dementia which brings together more than a hundred of the most useful resources with hyperlinks to websites, blogs, facebook pages and twitter feeds as “a brilliant initiative”
The Click Guide to Dementia is the first in a series of directories being developed to help people access and enjoy the opportunities and benefits offered by the internet. To reflect the rapid growth of digital technology solutions intended to enhance care and support we are planning to update this Guide in April 2017.
If your organisation would like to be included in the next edition of the Click Guide to Dementia please provide evidence of your impact. We will be highlighting those organisations who have shown how they are making a difference to people’s lives and the lessons learned and shared from both success and failure.
Social media provides real time feedback and you could show evidence of impact in many ways including: hits on your website, testimonials, number of report downloads, likes and comments on your Facebook page, engagement on Twitter and in discussion forums. Please email your details to Shirley@clickguide.co.uk with a link to the website and 100 word summary explaining why it should be included by 31st March 2017.
To keep informed about future publications, updated versions of the guides and other resources, why not sign up for our e-newsletter? Click Guides to Ageing Well, Digital Technology for Adult Social Care, Mental Health and Community Connections will be published over the next six months.
Find out how your organisation can subscribe to give staff, service users and volunteers online access to the Guide through the Click Guide to Dementia Update
First of all an introduction to the Connected Care Mindmap developed by @clarkmike. We have been identifying relevant resources over the past few months to share and give people a context for the problems identified through many online discussions and the Priorities for Care survey.
For me many key problems centred around confusion about the role and responsibilities of the different care and health bodies. How does NHS England link with Healthwatch, the Care Quality Commission and the Health and Wellbeing Boards? What will be the impact of the £3.8 billion Better Care Fund and the Integration Pioneers?
Recommended viewing the excellent Alternative Guide to the NHS produced by the Kings Fund.
I would like to encourage @TheKingsFund to produce a similar Alternative Guide to Social Care I think many people would find this very helpful because the sector is so complex and fragmented!
There is a need for cultural change in health and care services which will enable innovations to be adopted and adapted more quickly. “We need to create the environment for difficult and challenging conversations” and with a huge funding gap looming this was seen as a priority. Despite the fact that social care is critical to support people mdischarged from hospital the sector is seen as the junior partner. This is not doubt influenced by the considerable discrepancy between health and care budgets and that health care is free at the point of delivery whilst social care is means tested. Changing the culture of organisations with the added pressures of public expectation about openness and transparency was seen as a major challenge. There are currently perverse incentives in the funding mechanisms and little encouragement to be brave and take risks in the redesign of services.
There was considerable discussion about how people can access information about existing resources both online and offline. There was a recognition that we need to tailor information channels to suit the different needs of individuals. An innovative proposal was the suggestion of developing guides to “the 5 things I need to know” across the wider care sector.
I was interested to learn that Health and Social Care West Midlands have created a site to to support health, social care and wellbeing leaders in the West Midlands to develop the more integrated services envisioned in the Health & Social Care Act 2012. Could this provide a template for more regional sites which provide access to relevant and timely resources? @hscwm
The importance of enabling people in residential care to access the internet and digital resources was recognised and there was some astonishment that we do not know how many care homes currently provide this for residents.
A consistent theme was the need to share both good practice and to learn lessons from what has not worked. there were many examples shared of how different organisations are supporting and connecting people to feel less isolated and more supported in their communities. It is worth reading the newly published Joseph Rowntree Trust Report on what makes a better life for older people.
Identifying transition points and making sure that services are built around supporting individuals and their families was an important issue with many comments on the lack of basic information shared between the NHS and social care and poorly designed hospital discharge plans.
Many of the concerns about Integrated Care which were raised at Connected Care Camp are echoed in the recent @iMPOWERCONSULT report “A Question of Behaviours: Why delivering care integration and managing acute demand depends as much on changing behaviour as new systems and structures.”
One of the many sessions on the day discussed data driven social care which has been helpfully summarised by @resiflexUK in his post a round up of #psicare. An impressive summary thanks Conor!
Some big isssues:
On February 14th 2014 152 local authorities have to submit plans which should include how they are going to link health and social care data together by NHS number. The November TelecareLIN eNewsletter supplement on Integrated Care @clarkmikehelpfully provides the Better Care Fund requirements for joined up systems.
Who owns the data held on each of us and how can we free it?
How will local authorities deal with all of the self funders who will be eligible for an assessment under the new Care Bill?
There were very diverse levels of awareness about the potential of digital technology to help develop new ways of working and collaborations which are defined by outcomes rather than outputs. But a cautionary note from @MindingsStu an inspiring technology innovator and entrepreneur!
Please leave comments and let us have a conversation. Also, come and “Like” us on Facebook if that’s your thing, and follow Shirley and Stuart on Twitter:
Citizen 2013 June 13th London provided the opportunity for a stimulating and provocative discussion about digital engagement and government service in 2013. https://twitter.com/CareQualityComm has over 21,000 followers but only actually follows 215 people. http://citizen-2012.org/
Challenging comments from George Crooks @NHS24 “if you always do things the same way and never redesign services then #telehealth will always cost more” and “tech is potential disruptor, but service redesign is key. The workforce are trying to work round deficiencies in the current structures which include blocking staff from using social media”.
Panel debate on the pros and cons of Telehealth and Telecare chaired by https://twitter.com/RoyLilley and including ttps://twitter.com/mellojonny
Congratulations to Andrea Sutcliffe https://twitter.com/Crouchendtiger7 Chief Executive of the Social Care Institute for Excellence who has been appointed by the Care Quality Commission (CQC) as its first Chief Inspector of Adult Social Care.
Watch her on DSC Podcast 6: http://www.youtube.com/watch?v=WAF4Q5qx8gs
@LetToysBeToys
Campaign to stop retailers limiting children’s imaginations and interests by promoting some toys as only suitable for girls, and others only for boys.
We’re delighted to be back after our break, and even more delighted that this show has been crowd-funded. As usual the show features regular presenters Stuart Arnott from Mindings and Shirley Ayres, bringing you news of innovations right across the care sector.
The audio podcast and extensive shownotes will be published on the Disruptive Social Care site this weekend.
The Care in the Digital Age programme is designed to help your organization deliver more focused, cost effective services by showcasing digital technologies that offer new ways of supporting service users and carers.
The event presents digital technology solutions across a wide range from personal networks through to ‘keeping in touch’ systems and meal sharing initiatives. The emphasis is on technologies that promote independence, diminish social isolation and address the issue of digital exclusion amongst disadvantaged groups. It draws on our experience of the availability, impact and of web and app based systems in the sector (as detailed in our click guide to digital technology in adult social care and in the Provocation Paper Can online innovations enhance social care? published by the Nominet Trust).
The programme consists of a one day event aimed at people involved in health, social services, housing, education, economic regeneration and the police, and encourages participation from carers, service users and their representatives. As a follow-up, we can work with community builders and connectors to explore how these innovations can be embedded and supported through the development of local hubs.
Kent Care in the Digital Age takes place on Friday 12th July. The event is fully booked but you can follow the discussion on Twitter using the hastag #kentdigicare
We may be coming to your locality because we are now in discussion with a number of other local authorities, Health and Wellbeing Boards, housing associations and community groups to deliver the Care in the Digital Age programme across the UK.
If you would like to find out more I would be very happy to talk to you!
Being isolated and housebound can have a serious impact on a person’s health, well-being and quality of life. A new internet and smartphoneservice is helping housebound individuals to explore the outside world with a friend, relative, carer, or volunteer. The aim of Shared Walk is to help people stay in touch through sharing access to photographs and short videos that can be easily and spontaneously transmitted from a customised mobile phone app.
In particular, it allows anyone with a smartphone to capture and send narrated videos to a housebound partner with access to personal space on the Shared Walk website. It is hoped that this service will be particularly valuable for relatively isolated individuals with access to the website. It will enable them to keep in touch with any contact (or group of contacts) who can use a smartphone app. It is secure, accessible and user friendly to the novice – and it’s free to use.
The mobile member of this partnership typically captures brief video episodes of their daily lives with the phone app and instantly transmits them to ‘domestic’ partners to view and, if they like. comment upon through a simple webpage. The video might be outward looking views of a “walk” (although it might even be the view from a “journey” rather than a walk – say the view from a bicycle or car). Housebound participants can also subscribe to “stories” in which a mobile individual posts intermittent video clips that capture something of their everyday lives – this could range from a student,someone in business, a member of the clergy or a teacher.
“We were motivated by the idea that vivid and personal visual material was a powerful resource to animate and sustain relationships, particularly among those increasingly disconnected from an active social world.” Professor Charles Crook leading the team developing Shared Walk
The research team at the University of Nottingham (with funding from the Nominet Trust) have been looking at how everyday technology can help those who are socially and physically isolated feel more connected with their families, friends and community.
Shared Walk are partnering with charities working with housebound individuals to promote the service and encourage people to sign up. Have a look at the introductory video and do email Professor Crook charles.crook@nottingham.ac.uk or contact Charles via Twitter if you would like to be involved in this innovative project.
An interesting Twitter discussion prompted by a session at the All Change! 2012: Reshaping Local Public Services event organised by Improvement and Efficiency East Midlands with the underlying themes of commissioning and new models of service delivery.
Community Catalysts are an innovative social enterprise working to harness the talents of people and communities to provide high quality small scale, local care and support services. @CommCats
Whose Shoes was founded by Gill Phillips who is passionate about personalisation in health and social care. Whose Shoes? is an innovative resource which engages people to deliver public services in more creative ways.@WhoseShoes
RT @HSJEditor: Twitter’s conclusion on this appears to be ‘hardly surprising given Babylon’s patient cohort of relatively healthy people’.… 1 day ago
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RT @WendyPMitchell: People affected by dementia should have access to an Admiral Nurse when there’s a need just as much as people with canc… 3 days ago
RT @karlwilding: Best thing on grant making I have read for ages. Actually, best thing I have read on funding social change, full stop.
10… 3 days ago
RT @PaulBromford: "Many of our social sector organisations don't seek to put customers in control, or even regard them as paying customers.… 4 days ago
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